GALLBLADDER STONES/DISEASE & CYSTIC FIBROSIS : My story with my gallstone :-) (Part 1)

FK9_4493.jpg

 

#Cysticfibrosis #gallbladderstone #CF #livingwithcysticfibrosis #Challenges #lifestyle #acceptance #healing #connectingwithyourself #blogpost #awareness #talking #sharing

I was 22yrs old  when I experienced a discomfort on my right side of abdomen for the first time and a bloating feeling in my stomach and it was there for few days. It hurt a lot at times but since I had other things going on in my life I thought of it as muscle spasm and after few days it was gone.  After 6 months I could feel it again and that was the time when I had to get my routine ultra sound done where they saw I have a 10 MM OF SOLITARY CALACLUS (GALLBLADDER STONE). My doctor told me If I don’t have any unbearable pain, I can ignore it and thats why I carried it for all these 8 years. But I never thought or tried to explore the relationship between Gall bladder stones and cystic fibrosis.

Screen Shot 2018-05-19 at 10.44.51 AM.png

It happened again few more times and every time I would go to the doctor and he would give medicines. I didn’t think of it important as I have gone through Kidney stone pain and I was expecting this pain to be like that as well. But Ignorant me- I didn’t know there are different symptoms for different people and mine wee mild. When I got my recent Ultra sound done, I found out the stone has become 27mm by now.

Last one month I was having below giving symptoms: On & off  Diarrhea, Bloating, Feeling of fullness, Lose stool, Nausea, Gas, Discomfort around the abdomen.

Screen Shot 2018-05-19 at 10.59.31 AM.png

I stopped exercising as well, I wasn’t able to. It was then when it hit me that Its for sure my gall stone troubling me.

I did some research and this is what I found out: “Cystic fibrosis (CF) is a multi-organ, clinically diverse disorder caused by mutations in the cystic fibrosis transmembrane conductance receptor (CFTR). Awareness of extra-pulmonary manifestations, including gastrointestinal and hepatobiliary disturbances, is an increasingly important part of providing high-quality care to patients with CF. Furthermore, biliary disorders, including gallbladder and bile duct disease, are common complications of CF. Therefore, a thorough understanding and efficient clinical evaluation of the gallbladder and biliary tree is an important aspect of integrated care for the patient with CF in order to prevent progression of undetected pathology.”

And now I knew, I am in trouble and I need to get this removed. Though Gallbladder stone surgery is very simple process and advanced technology has made it a game of twenty minutes and two days of admission. But, Is it so simple for us too? I RESEARCHED :

“Although cholecystectomy is a routinely performed surgery around the world, patients with CF may be at increased risk of complications. These may include worsening pulmonary function post anesthesia, pre-operative infections or exacerbations of colonized organisms, delayed resumption of nutrition post-operatively, and acute DIOS due to bowel inactivity and use of pain medications.”

So this wonderful surgeon advised me to take my Pulmonology advise first. They ran few test and to my surprise, they said this is the good time to operate as your lungs aren’t showing any infections right now.

In CF patients, we keep getting lung infections and that makes us susceptible to other things as well but since right now, I am doing much better which I as well feel, they gave a go ahead for my surgery. The surgery is due next week: I will write it about how it went after its done.

This is what my pulmonologist said before taking the dates for my surgery:  “If a normal patient takes 1 week to recover, you might take 3 weeks. So keep your self ready and positive, It will be painful for you but do not worry, you are doing already very well and will do the best.” 

He didn’t tell me its easy, Its gonna be a two days things and all and I am happy he didn’t. I am glad he prepared me for it and now I have made up my mind and am ready for it.

Why is the surgery of Gall bladder stones Important:

Gallstones within the gallbladder often cause no problems. If there are many or they are large, they may cause pain. They also may cause problems if they block bile from leaving the gallbladder or move out of the gallbladder and block the bile duct. If their movement leads to blockage of any of the ducts connecting the gallbladder, liver, or pancreas with the intestine, serious complications may result. Blockage of a duct can cause bile or digestive enzymes to be trapped in the duct. This can cause inflammation and ultimately severe  pain , infection and organ damage. If these conditions go untreated, they can even cause death.

So you see, Like me don’t ignore it for 8 years. Now I realize why did I get my sugar levels high sometimes.

In CF, We already have compromised health, do not make it worse. May be post operative will be bit hectic for us, but its worth.

Will keep  posted, Much Love

Arouba 

Uncategorized

AroubaKabir04 View All →

:-) A seeking one.
By profession, a Wellness Coach for Physical and Mental Health, Certified Yoga and Pilates Therapist, Grand Master in Meditation, Traveller and a Blogger

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: