One step at a time-Breathe and live easy

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Allah mujhe dard ke kaabil bana diya,
Toofan ko hi kashti ka Sahil Bana diya,
Bechainiyan Samet ke Saare Jahan, ki Jab Kuch na ban sakaa toh mera Dil Bana diya…

The past two months has been a road with nails, and no other direction for me to go but forward.

I live with a constant downpour of different types of infections. I see more of ins and outs of the hospital and there is no joy in this when you have so many plans on the list. Though long back I had given up on making plans and taking life the way it comes, but if you are out there trying to earn your bread and butter as well and there are people dependent on you for their physical and mental health then there it goes, all out of the window. 

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I have a mindset of always trying to better myself through meditation, exercises, talking positive, playing with my fur babies, planning their picnic etc.

I want to improve, get better, get stronger, smarter, wiser not because I am expected but because I have always wanted to do this. Live each day of my life with love and laughter and age gracefully.

SO HAD IT NOT BEEN FOR MY ILLNESS, I DONT KNOW WHAT I WOULD HAVE BEEN AS A PERSON.

And now that one wish is getting little difficult –

I am not complaining or cribbing; Just sharing my mind-Please don’t think I am giving up but rather I am accepting my situation gracefully.

Living with Cystic Fibrosis has been not an easy journey but it’s been a rewarding one though at times I feel otherwise.

I have had the best chances to live and experience life. I value relationships, nature, love, emotions, and struggles more than anything. I experience life in the smallest things and have this naughty smile on my face. SO HAD IT NOT BEEN FOR MY ILLNESS, I DONT KNOW WHAT I WOULD HAVE BEEN AS A PERSON. 

At times, something so unpredictable and something new can make your life so restricted. I am constantly working on myself to stay healthy and trying to improve my health, and yet, there are times when I don’t feel like the numbers are showing and I am back at step.

Phoenix rising isn’t it?

Firstly, I know I have a challenging life but I still carry on with my daily routine. Slowly and gradually, I am satisfied with what I do in a days’ time. But then there comes those times when physically I get restricted like when in hospitals or at home on IV treatments.

The latter is a troublesome situation. It makes your brain work more and you tend to lose hope you might have generated or found in past. It makes you reflect on your present and your past with not too much of hope of your future. 

I am so sorry if I am not making much sense today.

But these are things I get to hear from others when they are going through a situation or I have experienced when people suffer through some trauma.

It’s not necessary to have a physical illness; it could be mental illness, some struggle, some trauma of one’s life.

The all-important point I try to make is- DONT GIVE UP. YOUR DEMENTORS ARE JUST A STEP AWAY AND READY TO GET YOU. You may have fought a lot for what you are today, internally and externally SO DONT LET THEM GET YOU. TALK TO PEOPLE WHO SPEAK POSITIVE, WHO ENCOURAGE YOU MORE. READ GOOD BOOKS. TRY MEDITATION AND WATCH WISER AND FUNNIER STUFF ONLINE. TRY TO FIND WAYS OF KEEPING YOURSELF POSITIVELY INVOLVED rather than giving up or surrendering. 

There is a thin line between surrendering and accepting.

Acceptance is the key- because that’s when you try to find solutions, look for better ways to help yourself. So acceptance that I have this problem would help me in finding ways of coping. YES, I HAVE ACCEPTED IT BUT I HAVE NOT GIVEN UP. 

So many people have so many bucket lists and wishes, but people like me have one wish that AT LEAST WHEN I AM SICK, THAT I COULD BREATHE WELL. NICE AND DEEP. We don’t ask much when we pray or if we pray. It can sometimes be frustrating to have to be doing nothing but breathing treatments which should have been so easier for every living being in this universe but we ruined everything possible. Played with creation. Created scientific modifications, ruin our atmosphere, environment through various ways and here we are- paying the price with so many genetic illnesses. 

But it’s one step at a time, let’s do it.

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‘If you celebrate your uniqueness, the world will too. It believes exactly what you tell it through the words you use to describe yourself; the actions you take to care for yourself; and the choices you make to express yourself. Tell the world you are one in a million who came here to experience wonder and spread joy and have not given up so soon. Expect to be accommodated.’

P;S Its always wonderful to see all of you writing me back and it only motivates me more and more. More and more blogs will come on the health update, more career choices, travels and much more. Thanks in advance for hearing me out, reading my blog. 

Love,

Arouba 

#cysticfibrosis #livingwithcf #livewithcf.com #arouba #stories #inspiration #motivation #cfinindia #cfsurvivalstories #health #lifestyle #yogi #learner #seeker

CF Survival Stories

AroubaKabir04 View All →

:-) A seeking one.
By profession, a Wellness Coach for Physical and Mental Health, Certified Yoga and Pilates Therapist, Grand Master in Meditation, Traveller and a Blogger

21 Comments Leave a comment

  1. Such an awesome post.. I can completely relate to this as I know the frustration u would feel when u cant breathe normally (being dependent on an oxygen concentrator 24 hrs a day is no picnic).. I just wanna say that I am so proud of u and feel inspired..I wish I cd cultivate such conviction and optimism although I m trying really hard to.. I hope the bad days reduce and good days increase!! Cheers to u… god bless.. 🤗

    Liked by 1 person

    • I know you would understand it and trust me people like you gave me an inspiration and hope of living and struggling to it. Thanks. 💕💕💕💕

      Like

  2. YOUR REFERENCES ARE MAKING ME YOUR BIGGEST FAN DAY BY DAY REALLY LOVED THESE TWO…..
    DONT GIVE UP. YOUR DEMENTORS ARE JUST A STEP AWAY AND READY TO GET YOU.
    Allah mujhe dard ke kaabil bana diya,
    Toofan ko hi kashti ka Sahil Bana diya,
    Bechainiyan Samet ke Saare Jahan, ki Jab Kuch na ban sakaa toh mera Dil ️ Bana diya…
    AND MOREOVER DON’T GET A PINT OF DEPPRESION TO GET INTO YOURSELF COZ NOT FOR YOU FOR US WHO ARE FOLLOWING YOU AS OUR IDOL.
    THATS IT ZYADA HO GYA SHAYAD XDXD.
    RESTING MY COMMENT NOW.

    Liked by 1 person

  3. You truly are an inspiration Arouba to everyone living with chronic and genetic disorders.
    Love your bright smile and positive attitude of never giving up and a big thank you for spreading a healthy lifestyle and showing how to live to the max.

    Liked by 1 person

  4. Hi Arouba…. you couldn’t be more right … living with CF is so challenging, CF related problems ‘re not so pronounced during the initial years as they get during adolescence when the hormonal upheavals ‘re at it’s peak, consequently, the kids get headstrong n often try to avoid doing excercises esp when they ‘re hard pressed for time on account of long school hours. We always look up to you for motivation. Please keep up your spirits and stay blessed always.

    Liked by 1 person

    • Thank you so much Ji. They will surely understand soon the importance of it and start doing it. Just keep them reminded. That’s all. You are a strong support and I know would encourage her. 🤗🤗🤗

      Like

  5. Guzar jaengey khoobsurat lamhey
    Yoo hi musafiryo ki tarah
    Tumhari sabr aur saheenshelta ,
    reh jaingi Hur Jehan mei
    Rukey rasto ki tarah
    Likha hua har Alfaaz Ban jaiga nasiyat
    Is zindagi kei Safar kei liye

    Your article heading
    One step at a time , breath and live easy,
    Is real purpose designed by the nature for all human beings ,
    Infact , at your time of pain also , you are enlightening we souls by your practise of acceptance, sharing , bearing , it is easy said than done .

    Jis tun lagey
    Wahi mun jaaney

    You are an angel as angels alone can take this kind of pain and still continue to spread happiness, hope and possess moral / physical courage to take your pains as tool to inspire other

    Stay blessed and keep writing.

    Liked by 1 person

  6. ‘A tiny hamper filled with goodies that never run out of stock’ is how I have always pictured you. You have been a constant source of inspiration and positivity in my life. When my quota of optimism runs dry, I know where to score for more- obviously you! There hasn’t been a moment in my life where I have turned to you and you failed to pacifiy me. Your smile radiates a warmth that can melt any cold soul. People like you are a living proof that goodness does exist and better, it has a heartbeat! More power and love to you Bhabhijaaan! Don’t know where I’d be without you by my side. An inspiration, a healer and the most endearing soul I have had the pleasure of knowing. Always rooting for you, much love! You make us so proud, everyday, just by existing! And the little things you do, they mean the world to me.

    Liked by 1 person

  7. I have known you from over 20 years. Even in bad times, you have managed to pull yourself with the brightest of smiles.

    You have seen many lows and have come out as a more optimistic person every time. I am not surprised that you shine in every battle even the one that you are fighting now. Initially when you told me about it, it left me speechless. But having known you since we were kids, I knew for a fact that you will walk through it like it’s nothing.

    I can keep on writing, and the space may run out. I just want to wish you best of health and smile all the way through.

    Stay the awesome person you are.


    Slahu

    Liked by 1 person

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