Cystic Fibrosis (CF) is a rare genetic disorder affecting very few people in India. I am lucky enough to be one of the oldest & healthiest CF patient in India. Lets create awareness about Rare Genetic medical conditions more but REMEMBER its JUST A MEDICAL CONDITION, YOU ARE MUCH MORE THAN A CONDITION.
When dealing with chronic illness life can become quite difficult and now one of those difficulties is to find a place which shall have less pollution, fresh air, warm temperature with better hospital services. Challenging ! Yes, its quite challenging because being in India, finding such place is a challenge. I live in a city…
Read more Process of relocation: Cities won’t let us breathe
#livingwithCfinindia #cysticfibrosis #arouba #letspledgetodefeatit #lovelife #bepositive Cystic fibrosis, or CF, is an inherited chronic disease that affects the lungs and digestive system. Approximately 70,000 worldwide are living with the disease. And since I am one among them, I have first hand experience of the drugs used on us. We are 12 month- 365 days on…
#livingwithCfinindia #cysticfibrosis #arouba #letspledgetodefeatit #lovelife #bepositive I have been thinking of writing since so many days but there are so many things happening that I wasn’t getting time to write and update my blog. I am a person who has a mindset of always trying to better myself and my surroundings. And when i think…
Read more Cystic Fibrosis & Dengue fever: Dreadful August 2017
I might have not written about our annual meets before which happens at this reputed hospital in my city, Gurgaon. Parents along with their CF children come from different parts of the country and listen or share things with us. So this meet happens in every July and I have been going there since 5…
By now you must be knowing that my respiratory tract is almost everyday Infected. This year was not a very good year for me, One may be because of CF’s progression and secondly, here in India, it’s very difficult to diagnose anything on time because of lack of awareness. But by God’s grace, I am fighting…
Read more Sphenoid Sinusitis: One of The Most Dangerous Sinus Infection
I woke up and I felt heaviness in my breath and sudden pain in my lungs. But lived for 6 winters in Delhi Ncr, now I feel like it’s safe to say I’ve learned a thing or two about how to make it through the cold months in (mostly) one piece. Having Cystic Fibrosis means…
Read more How to survive the winters if you have cystic fibrosis
If you feel nerve pinching or tingling sensation, don’t panic. Cystic fibrosis patients might have this at earlier or later stages. One morning I woke up when I was feeling alright, not too weak not too strong but there was this strange and sudden nerve pinching I felt. It was comparatively a good day for me…
Read more Nerve pinching or needling might be electrolyte deficiency
# Cysticfibrosis #livingwithCF #realexperiences #journeyofsomeonewholiveswithCF I vaguely remember my childhood and I remember the episode of breathlessness, coughing, getting tired, waking up early and lot of stomach upset. And in my school years, I remember few girls not sharing lunch with me as they wold think they might get infected if they did. And yes,…
Lyfe is beautiful. It gives us opportunities. And I believe in Living it. Real Living. 🙂 ” Dear stranger Tell me your story and I will tell you mine Show me your wounds and I will share mine Lets strike a friendship: Let the journey be little less painful. Arouba
Another Living Soul: Exploring & Seeking 