Cystic Fibrosis (CF) is a rare genetic disorder affecting very few people in India. I am lucky enough to be one of the oldest & healthiest CF patient in India. Lets create awareness about Rare Genetic medical conditions more but REMEMBER its JUST A MEDICAL CONDITION, YOU ARE MUCH MORE THAN A CONDITION.
Monsoons are always welcome after the sweltering summer heat (Especially If the temperature is 45-48 degrees) but with its pleasant breeze, it also brings some unwelcoming guests like Dengue, Malaria, Fever, Upset stomach, Running nose and Sore throat. I have found some tips and tricks to stay away from these things as last year I […]
Read more Tips & Tricks to avoid Seasonal Infections and Fever
I remember, as a child I would always get dreamy eyed at the mere thought of travelling. I was in love with the idea of travelling alone around the world but that view got obscured amidst the hustle bustle of life. Studies, career, health, etc etc etc. Often I planned trips but they never materialized…
Once someone said, “You are so amazing with people. You can get along with them so easily. Accept them and are always smiling. I said, “ I know the real value of life and smiles now. Learnt it the harder way.” But its not always true – sometimes its so difficult to talk to few…
I am really excited right now while putting this down. I was working on this one since sometime and today, its here. Read it and see, it isn’t so difficult to live with some medical condition as we think of it. Everyone has a problem in one or the other way, Its just how we look at it. If we want it…
Read more Examples of Hope – PEOPLE who lived or are living with CYSTIC FIBROSIS
Looks like a child leaving for her treasure hunt Patients with cystic fibrosis often develop cholelithiasis. Subsequently, many will suffer from symptoms of their gallstones and develop cholecystitis. Because of the high risks associated with induction of anesthesia in patients whose pulmonary status is compromised, surgery is sometimes delayed or avoided. And thats what THE…
Read more GALLBLADDER REMOVAL- POST OPERATIVE: My story with my gallstone :-) (Part 2)
#Cysticfibrosis #gallbladderstone #CF #livingwithcysticfibrosis #Challenges #lifestyle #acceptance #healing #connectingwithyourself #blogpost #awareness #talking #sharing I was 22yrs old when I experienced a discomfort on my right side of abdomen for the first time and a bloating feeling in my stomach and it was there for few days. It hurt a lot at times but since…
Read more GALLBLADDER STONES/DISEASE & CYSTIC FIBROSIS : My story with my gallstone :-) (Part 1)
As I already mentioned before, my condition was diagnosed much later and until then I was treated for various other things but why was all that happening – no one knew. So at 21, when I had finished my college, had started a job and was looking forward to my amazing life, I got too…
Read more Journey from a Depressed Cystic fibrosis patient to a Wellness coach
And when you think that you can’t do something which you have been wanting to do or seen other people doing it- that’s when someone knocks and offers you the same. I am talking about this Women Car Rally which recently happened from New Delhi to Jaipur. It was my sister Who sent me a…
When dealing with chronic illness life can become quite difficult and now one of those difficulties is to find a place which shall have less pollution, fresh air, warm temperature with better hospital services. Challenging ! Yes, its quite challenging because being in India, finding such place is a challenge. I live in a city…
Read more Process of relocation: Cities won’t let us breathe
#livingwithCfinindia #cysticfibrosis #arouba #letspledgetodefeatit #lovelife #bepositive Cystic fibrosis, or CF, is an inherited chronic disease that affects the lungs and digestive system. Approximately 70,000 worldwide are living with the disease. And since I am one among them, I have first hand experience of the drugs used on us. We are 12 month- 365 days on…
